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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Tag: disabled chronicles

Disabled Chronicles, No.7

The Set Up I’ve been putting off getting a new electric power wheelchair for well over a year. Okay, so it’s closer to 2/3-ish years.   I know, you’re thinking, ‘But isn’t your chair like, important?’ Extremely. My wheelchair operates like my legs. If I need to get something from the store, I use my wheelchair. When I need to go to the doctors office, I use my wheelchair. Gotta roll to the bathroom and brush my teeth? You got

Silent Detonation

Her hands were warm and firm as they held onto mine the first time we were meeting.  She knew to reach into my space to complete the connection.  Knew from the hours of calls logged, from the technical and medical explanations, knew from my recountings and stories of changing plateaus, that she would have to meet M(m)e more than half way.  And so, there she stood, exhausted from travel and maybe some self-conscious worry, holding both of my sun-browned SMA

#CeliacWhileBlack

New-to-Me doctors are an interesting bunch: They either discount everything I say and treat me like any other typical patient (never a good idea) or they are so determined to peg me into some kind of category that they miss things. That is never good either. So it was with a leery mind that I followed my PCPs recommendation to follow up with an allergist after things took a left turn for me earlier this year. That horrible blood draw

Hard Stick

Those who’ve been following me for any extended length of time know that my body does not like giving up my veins for sacrifice (this is called: being a hard stick). Not for routine blood work or to save my life. You’d also know my ordeal with Quest labs, where they can *never* find my veins, which usually ends with me having to admit myself to the nearest hospital as outpatient to have their phlebotomist who is well versed in

Those You Touch By Showing Up

I dunno how to categorize this (Those You Touch By Showing Up?)… So here you go: I just got off the bus, after a successful call with a new client/art work admirer an hour or so ago. Feeling awed but grateful for things cause wins are awesome after so much loss in my life. It was past lunch as I headed to Chipotle to meet up with Shara to chop it up and just fawn over the crazy awesome of

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