web analytics

Sandra Jean-Pierre

Tag: disabled chronicles

#CeliacWhileBlack

New-to-Me doctors are an interesting bunch: They either discount everything I say and treat me like any other typical patient (never a good idea) or they are so determined to peg me into some kind of category that they miss things. That is never good either. So it was with a leery mind that I followed my PCPs recommendation to follow up with an allergist after things took a left turn for me earlier this year. That horrible blood draw

Hard Stick

Those who’ve been following me for any extended length of time know that my body does not like giving up my veins for sacrifice (this is called: being a hard stick). Not for routine blood work or to save my life. You’d also know my ordeal with Quest labs, where they can *never* find my veins, which usually ends with me having to admit myself to the nearest hospital as outpatient to have their phlebotomist who is well versed in

Those You Touch By Showing Up

I dunno how to categorize this (Those You Touch By Showing Up?)… So here you go: I just got off the bus, after a successful call with a new client/art work admirer an hour or so ago. Feeling awed but grateful for things cause wins are awesome after so much loss in my life. It was past lunch as I headed to Chipotle to meet up with Shara to chop it up and just fawn over the crazy awesome of

Body Conditions: I Take Time

She barely whispers “Good Morning” when she comes into my room.  She thinks I may be asleep.  Most times though, as soon as her key slips through the deadbolt, I am instantly awake.  My hearing that acute, my alertness that intense.  I let her think she has woken me up, using those few sweet minutes to ready my mind because I know that I take time. She always asks how I spent the night.  I actually stop and think about

Body Conditions: SMA3

I don’t write about my main condition often.  In fact, I barely mention it’s name in real life (Kugelburg-Welander Syndrome, Spinal Muscular Atrophy (SMA), Type 3 or just SMA3).  Besides the naming of it not doing much to manage or change it’s effects on me, no one knows WHAT all its name implies or what its effects on me are.  So this usually has me launching into a super simple explanation of how this syndrome is my muscles’ inability to

""