I don’t write about my main condition often.  In fact, I barely mention it’s name in real life (Kugelburg-Welander Syndrome, Spinal Muscular Atrophy (SMA), Type 3 or just SMA3).  Besides the naming of it not doing much to manage or change it’s effects on me, no one knows WHAT all its name implies or what its effects on me are.  So this usually has me launching into a super simple explanation of how this syndrome is my muscles’ inability to