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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Tag: health

Disabled Chronicles – Covid19 Edition, No.21

He was late. I hung around the TeleHealth conference room 20 minutes past my 3:30pm appointment. I checked if I had connected correctly, followed all the procedures… and I had. It wasn’t me, it was Him. So I waited some more. A very bored but familiar lead doctor popped up on my screen, followed by a very quiet secondary Fellow I had never met. We exchanged pleasantries and I was informed the Neurologist (in charge of the SMA Clinic overseeing

Disabled Chronicles, No2e1

I casually came to know his name. He was next up to get dosed after my trial at the hospital. When I bid my awesome nurses goodbye until my next maintenance dose, I cheered on Joe (not his real name) and wished him (in absentia) and the team of nurses well and good luck. If the medication worked half as well for him as it did for me, I knew what kind of life changing experiences he was lined up

Disabled Chronicles, No.2d1

There was a taped interview I did locally when my art was presented at the gallery last year. I got dressed and showed up that day, sure that my hat and winter shawl were all in place. Camera pointed at me, mic catching my lilting voice, charm on fully – the interview went well. The videographer assured me he’d send a link once the clip was compiled. When the link arrived some days later, I eagerly watched it, waiting for

Disabled Chronicles, No.2c

UPDATE: Spinraza Injection No.3: I wonder if this is what it was like to be made in the image of G-d that first time: glorious, innovative, sacred. Because what was not mentioned in all the awe-inspiring verklemptness of it all, is that it’s a bit painful and quite uncomfortable. With Loading dose No.2, toward the tail end of the wait period before No.3, there was this swath of muscle, from the back of my right calf, across the outer side,

Lazara

© 2019 Sandra Jean-Pierre This body in silent dissension over being roused from its long assumed Final march whines aches cries from joy and pain uncertainty realizing there may be life yet left for the living… we Both hold on, scared and leaning in for the ride #SpinrazaShit #DisabledChronicles #TrueStoriesOf2019 #WakingUpMusclesHurt #IFeelLikeWalkingAround

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