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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Tag: health

Disabled Chronicles, No2e1

I casually came to know his name. He was next up to get dosed after my trial at the hospital. When I bid my awesome nurses goodbye until my next maintenance dose, I cheered on Joe (not his real name) and wished him (in absentia) and the team of nurses well and good luck. If the medication worked half as well for him as it did for me, I knew what kind of life changing experiences he was lined up

Disabled Chronicles, No.2d1

There was a taped interview I did locally when my art was presented at the gallery last year. I got dressed and showed up that day, sure that my hat and winter shawl were all in place. Camera pointed at me, mic catching my lilting voice, charm on fully – the interview went well. The videographer assured me he’d send a link once the clip was compiled. When the link arrived some days later, I eagerly watched it, waiting for

Disabled Chronicles, No.2c

UPDATE: Spinraza Injection No.3: I wonder if this is what it was like to be made in the image of G-d that first time: glorious, innovative, sacred. Because what was not mentioned in all the awe-inspiring verklemptness of it all, is that it’s a bit painful and quite uncomfortable. With Loading dose No.2, toward the tail end of the wait period before No.3, there was this swath of muscle, from the back of my right calf, across the outer side,

Lazara

© 2019 Sandra Jean-Pierre This body in silent dissension over being roused from its long assumed Final march whines aches cries from joy and pain uncertainty realizing there may be life yet left for the living… we Both hold on, scared and leaning in for the ride #SpinrazaShit #DisabledChronicles #TrueStoriesOf2019 #WakingUpMusclesHurt #IFeelLikeWalkingAround

Disabled Chronicles, No.2b1

Looked down at my naked thigh this morning while I tried to extend my right leg. The muscle on top rose in a massive sheet. It reminded me of the definition bodybuilders get. I was shocked? Before Spinraza, my muscles didn’t do that. Not even a little bit. The movement of muscle was much more subtle, bordering on imperceptible. You would have had to place your hand on my thigh when I flexed to feel it. Now, you can SEE

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