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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Category: Disabled Chronicles

Disabled Chronicles, No.2b1

Looked down at my naked thigh this morning while I tried to extend my right leg. The muscle on top rose in a massive sheet. It reminded me of the definition bodybuilders get. I was shocked? Before Spinraza, my muscles didn’t do that. Not even a little bit. The movement of muscle was much more subtle, bordering on imperceptible. You would have had to place your hand on my thigh when I flexed to feel it. Now, you can SEE

Disabled Chronicles, No.2b:

UPDATE: Spinraza Injection No.2: Trying to save my life looks like mountains of lab work and urine samples to make sure my kidneys are okay. It looks like two cancellations and a ‘maybe today will be the day…? (I doubt it)’ attitude because you’re tired of the running around, doctor visits, labs and more labs but realize, what is the alternative?Saving my life looks like not wanting to take any pictures of my comfy cow slippers this time because it

Disabled Chronicles, No.2

I was hoping this update would have been as easy and neat as one of my many #DisabledChronicles posts: a dramatic retelling of my true life events leading to an ultimate revelation. Succinct. Deep. Raw. Instead, in the days since my procedure, I’ve found myself near tears, touched by the outpouring of magick woo, prayers and love from those whom I share community with, who love and support me. I’ve been moved by the protection and care from those who

Fight ME!

I was one of those kids who was sure that No ONE was the boss of me; not even my Momma. I remember the very first time I was ever angry with her, being five or six years old and how I glowered at her as she tied my dark brown orthopedic shoes and tried to push me to do more physical therapy when I just didn’t want to. As she lifted her head after tying my shoes, she was

Celiac Chronicles, No.7465

That one time you ask your aide to make you multiple servings of the new Cream Of Rice cereal you found and that was purchased along side Bethany’s Cream Of Wheat… And though they were bagged together but in separate containers, your aide managed to grab the wrong box (and you didn’t even think to triple check to ensure she grabbed the correct one) and proceeded to make a whole 12 mini containers worth of the Cream Of Death so

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