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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Category: Life


This pandemic has made me stop talking. Has frozen my thoughts from being born. Has stifled my creativity. Has wrapped me in familiar trauma drenched bandages, made new. It’s covered my eyes. It’s muted the taste on my tongue. This pandemic has washed up and over and through Me diluted me I don’t remember how to exist beyond the hours of the similar days I don’t know… #truestoriesof2020

Disabled Chronicles, No. 69053389432794

I take near scalding showers. If the water don’t make my skin red and prickle – I don’t want or need it in my life. The ‘safe’ setting for most water heaters is B – warm enough to do something but safe enough not to burn children. The one at the house is set between C and D – well past the safety. Any children visiting my house, must use the waters with parental supervision. My Aides have snatched their

Disabled Chronicles, No. 2f

My kidneys decided that the 18 of June would not be a good day for my next Spinraza injection. This, despite my admittedly questionable attempt at hydrating in preparation for it. My urine, though average looking in the sample cup that I zip bagged and cradled in my lap on the way to the lab, carried a protein payload that would choke a horse. For the second time since being aware of and keeping track of protein to creatinine levels,

Disabled Chronicles – Covid19 Edition, No.21

He was late. I hung around the TeleHealth conference room 20 minutes past my 3:30pm appointment. I checked if I had connected correctly, followed all the procedures… and I had. It wasn’t me, it was Him. So I waited some more. A very bored but familiar lead doctor popped up on my screen, followed by a very quiet secondary Fellow I had never met. We exchanged pleasantries and I was informed the Neurologist (in charge of the SMA Clinic overseeing

Disabled Chronicles – COVID-19 Edition, No.23

That one time you steal out yo house to make a quick trip to Walgreens to get some OTC meds cause you ran out and though delivery would have been optimal it was 1) too expensive and b) wouldn’t arrive until next week 🙄 So you convince yourself that the quick trip would be worth it and you head out at top speed, causing your front wheels to rattle like they about to give up on life, while you watching