web analytics

Sandra Jean-Pierre | Digital Artist & Writer of Words.

Category: Life

Disabled Chronicles, No.2b1

Looked down at my naked thigh this morning while I tried to extend my right leg. The muscle on top rose in a massive sheet. It reminded me of the definition bodybuilders get. I was shocked? Before Spinraza, my muscles didn’t do that. Not even a little bit. The movement of muscle was much more subtle, bordering on imperceptible. You would have had to place your hand on my thigh when I flexed to feel it. Now, you can SEE

Disabled Chronicles, No.2

I was hoping this update would have been as easy and neat as one of my many #DisabledChronicles posts: a dramatic retelling of my true life events leading to an ultimate revelation. Succinct. Deep. Raw. Instead, in the days since my procedure, I’ve found myself near tears, touched by the outpouring of magick woo, prayers and love from those whom I share community with, who love and support me. I’ve been moved by the protection and care from those who

Fight ME!

I was one of those kids who was sure that No ONE was the boss of me; not even my Momma. I remember the very first time I was ever angry with her, being five or six years old and how I glowered at her as she tied my dark brown orthopedic shoes and tried to push me to do more physical therapy when I just didn’t want to. As she lifted her head after tying my shoes, she was

Disabled Chronicles, No.8

The amount of advocating I’ve had to do for myself (and with some help) this past week has been astronomical. This has been on top of the normal fuckery people bring on the daily. It’s also made me weary. The landscape of my main condition has been shifting… for some time, if I’m honest. This past week was the reckoning. I advocated for new equipment, new services and other things besides. These recent days behind me, have been my main

Disabled Chronicles, No.7

The Set Up I’ve been putting off getting a new electric power wheelchair for well over a year. Okay, so it’s closer to 2/3-ish years.   I know, you’re thinking, ‘But isn’t your chair like, important?’ Extremely. My wheelchair operates like my legs. If I need to get something from the store, I use my wheelchair. When I need to go to the doctors office, I use my wheelchair. Gotta roll to the bathroom and brush my teeth? You got

""