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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Category: Health

Disabled Chronicles, No.2c

UPDATE: Spinraza Injection No.3: I wonder if this is what it was like to be made in the image of G-d that first time: glorious, innovative, sacred. Because what was not mentioned in all the awe-inspiring verklemptness of it all, is that it’s a bit painful and quite uncomfortable. With Loading dose No.2, toward the tail end of the wait period before No.3, there was this swath of muscle, from the back of my right calf, across the outer side,


© 2019 Sandra Jean-Pierre This body in silent dissension over being roused from its long assumed Final march whines aches cries from joy and pain uncertainty realizing there may be life yet left for the living… we Both hold on, scared and leaning in for the ride #SpinrazaShit #DisabledChronicles #TrueStoriesOf2019 #WakingUpMusclesHurt #IFeelLikeWalkingAround

Disabled Chronicles, No.2b1

Looked down at my naked thigh this morning while I tried to extend my right leg. The muscle on top rose in a massive sheet. It reminded me of the definition bodybuilders get. I was shocked? Before Spinraza, my muscles didn’t do that. Not even a little bit. The movement of muscle was much more subtle, bordering on imperceptible. You would have had to place your hand on my thigh when I flexed to feel it. Now, you can SEE

Disabled Chronicles, No.2b:

UPDATE: Spinraza Injection No.2: Trying to save my life looks like mountains of lab work and urine samples to make sure my kidneys are okay. It looks like two cancellations and a ‘maybe today will be the day…? (I doubt it)’ attitude because you’re tired of the running around, doctor visits, labs and more labs but realize, what is the alternative?Saving my life looks like not wanting to take any pictures of my comfy cow slippers this time because it

Disabled Chronicles, No.2

I was hoping this update would have been as easy and neat as one of my many #DisabledChronicles posts: a dramatic retelling of my true life events leading to an ultimate revelation. Succinct. Deep. Raw. Instead, in the days since my procedure, I’ve found myself near tears, touched by the outpouring of magick woo, prayers and love from those whom I share community with, who love and support me. I’ve been moved by the protection and care from those who