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Sandra Jean-Pierre | Digital Artist & Writer of Words.

Category: Health

Disabled Chronicles, No.68643

My body has been moved and manipulated by many pairs and sets of gloved hands over the last few months. New hands, unsure hands, cold ones, warm ones. Hands with chipped Tiffany blue polish blurred through the vinyl of the gloves, some with watches, most with no jewelry at all. I generally just lay there, waiting for them to decide on where and how much they should move or adjust or bend my arms and legs and torso, even after

Disabled Chronicles, No.2c

UPDATE: Spinraza Injection No.3: I wonder if this is what it was like to be made in the image of G-d that first time: glorious, innovative, sacred. Because what was not mentioned in all the awe-inspiring verklemptness of it all, is that it’s a bit painful and quite uncomfortable. With Loading dose No.2, toward the tail end of the wait period before No.3, there was this swath of muscle, from the back of my right calf, across the outer side,


© 2019 Sandra Jean-Pierre This body in silent dissension over being roused from its long assumed Final march whines aches cries from joy and pain uncertainty realizing there may be life yet left for the living… we Both hold on, scared and leaning in for the ride #SpinrazaShit #DisabledChronicles #TrueStoriesOf2019 #WakingUpMusclesHurt #IFeelLikeWalkingAround

Disabled Chronicles, No.2b1

Looked down at my naked thigh this morning while I tried to extend my right leg. The muscle on top rose in a massive sheet. It reminded me of the definition bodybuilders get. I was shocked? Before Spinraza, my muscles didn’t do that. Not even a little bit. The movement of muscle was much more subtle, bordering on imperceptible. You would have had to place your hand on my thigh when I flexed to feel it. Now, you can SEE

Disabled Chronicles, No.2b:

UPDATE: Spinraza Injection No.2: Trying to save my life looks like mountains of lab work and urine samples to make sure my kidneys are okay. It looks like two cancellations and a ‘maybe today will be the day…? (I doubt it)’ attitude because you’re tired of the running around, doctor visits, labs and more labs but realize, what is the alternative?Saving my life looks like not wanting to take any pictures of my comfy cow slippers this time because it