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Study of Hands: Leaning In
On the heels of some pretty awful news two weeks ago, I received an email from someone advising me that they were curating a digital art show and wanted to invite me to participate. I wanted to ignore it. As a matter of fact, when I received a similar email from the...
Body Conditions: I Take Time
She barely whispers "Good Morning" when she comes into my room. She thinks I may be asleep. Most times though, as soon as her key slips through the deadbolt, I am instantly awake. My hearing that acute, my alertness that intense. I let her think she has woken me...
Body Conditions: SMA3
I don't write about my main condition often. In fact, I barely mention it's name in real life (Kugelburg-Welander Syndrome, Spinal Muscular Atrophy (SMA), Type 3 or just SMA3). Besides the naming of it not doing much to manage or change it's effects on me, no one...
Creating
For the past month, I have been creating... but not like you'd think. I've been giving answers to questions on paperwork to create means to clear up my backyard, still. I've been making phone calls, creating and rekindling connections. I've been taking inventory of...
Lessons from Hurricane Irma, No.1
I call Nephew into my room, greet him and ask if he can help me. He nods and waits. I take as deep a breath as I can and rattle off a list of medications I need him to pour, shake, spray and give me. He used to categorically object to my use of so much medication in...
Lessons of Hurricane Irma, No.2
The tops of my feet looked like freshly baked loaves of bread: sun-browned and puffy. Rather inviting if they were actual loaves of bread instead of feet. It was day five of no electricity, thus no AC and the house was broiling in the mid-day sun. Penelope The...
Lessons Of Hurricane Irma, No. 3
I usually have anywhere from 5 on the low end, up to 25+ fully ready to heat and serve gluten free meals stashed in my deep freezer and my fridge freezer. I also have the entire first freezer drawer of my two drawer fridge freezer for all my gluten free stuff: frozen...
Disabled Chronicles, No. 911
That one day, you head to your electrologist appointment and what is normally a very painful but necessary part of your life to keep you from looking like a mama bear, has you sitting there asking her if the machine is turned on cause you're not feeling any of the...
Fight In The Belly
I don't remember what her face looks like. I remember that she had brown skin like mine, that she was wiry, where my own Mom had not been and that she had this boundless energy that I could not for the life of my five year old self, understand. What her sole mission...
Dream Of You
© 2017 Sandra Jean-PierreI dream of Youbeing insidewhere it issafeandwarm, where You have all of Me in your palm, where I can whisper Your name to my hearts content and be Yours, fully. Baby… I need to breathe your air, need the scent of You, need the feel of You...
Out Of Order
My Peers are in their late 30s/early 40s. Some have been to and graduated college or University. Some of them are married. Some have children. Many of them have careers that they either love or hate. All of them are making it through the best they can. And I am on...
Disabled Chronicles, No.3753
In the midst of a morning full of fuckery that my sister and brother are bailing me out of... Me: (To Sister) If you wash my face, I'll brush my teeth and I'll be able to get done faster. Then you can get a yogurt for me so I won't leave on an empty stomach. ...
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YOUTUBE
Elevate Relaxing Sleep is my YouTube channel dedicated to various sounds to help you sleep. Check it out, subscribe and let me know how it works for you- Sweet Dreams!