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Disabled Chronicles, No. 69053389432794
I take near scalding showers. If the water don’t make my skin red and prickle - I don’t want or need it in my life. The ‘safe’ setting for most water heaters is B - warm enough to do something but safe enough not to burn children. The one at the house is set between C...
Disabled Chronicles, COVID 19 Edition, No. 12
I haven’t spoken in weeks. Outside of the idle prattle with my Aides, I’ve been pretty silent. On social media and in real life. Things have been hard. Realizations sobering. Life has been feeling very short, finite. But today, I need to do some talking, cause this...
Disabled Chronicles, No. 2f
My kidneys decided that the 18 of June would not be a good day for my next Spinraza injection. This, despite my admittedly questionable attempt at hydrating in preparation for it. My urine, though average looking in the sample cup that I zip bagged and cradled in my...
Disabled Chronicles – Covid19 Edition, No.21
He was late. I hung around the TeleHealth conference room 20 minutes past my 3:30pm appointment. I checked if I had connected correctly, followed all the procedures... and I had. It wasn’t me, it was Him. So I waited some more. A very bored but familiar lead doctor...
Disabled Chronicles – COVID-19 Edition, No.23
That one time you steal out yo house to make a quick trip to Walgreens to get some OTC meds cause you ran out and though delivery would have been optimal it was 1) too expensive and b) wouldn’t arrive until next week 🙄 So you convince yourself that the quick trip...
Disabled Chronicles – COVID-19 Edition, No.20
Ya know... there’s a whole bunch of new folx out here during this COVID19 situation who are feeling a whole lot of panicked and uncomfortable around being food insecure, housing insecure and unsure how they’re gonna meet their bills because what they have coming in,...
Disabled Chronicles, No2e1
I casually came to know his name. He was next up to get dosed after my trial at the hospital. When I bid my awesome nurses goodbye until my next maintenance dose, I cheered on Joe (not his real name) and wished him (in absentia) and the team of nurses well and good...
Disabled Chronicles, No.2e
Her finger landed in the space between my eyes gently, like a soft cat paw, sending a hush of quiet energy through my body and mind. “In meditation they tell Us to tap and focus here...” She couldn’t have known about the year I spent in meditation study under the Sant...
Black Women Tears
There are tears Black Women shed, that speak of every disappointment and hurt that’s brought her to this very moment. They are tears of anguish and sometimes despair that maybe encompass never being regarded as precious, even as a GirlBaby or a WomanChild. They are...
Disabled Chronicles, No.2d2
After Spinraza injections, the ‘floaties’ in my eyes appear like straight lengths of ‘string’ with an impressive knot in the middle. Uniform, peculiar as my ‘normal’ floaties go, which are bendy, twisted affairs, beautiful in their organic go at existence. Plentiful...
Disabled Chronicles, No.675
My feet feel like I’ve been standing on them all day. They are achy and throbby and super glad to be in bed. I did not use my fancy schmancy foldy chair to adjust myself but for one hour today... really over the past four days. I’ve been working. Planning. Dreaming....
Reminder
By way of My Cowboy, Ira Wile: “The problem is you’re too busy holding on to your unworthiness” — Ram Dass
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