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Disabled Chronicles, No. 313

Disabled Chronicles, No. 313

I just spent the last hour of my life re-certifying for my benefits. These benefits include SNAP (food stamps) and most importantly Long term care benefits. These are the benefits that pay for the aides that come three times a day to help me, which allows me to stay...

The Village

The Village

My New Home This is what the serenity of my new home looks and feels like. I wanted to share it with You because in large part, You helped to make it possible. I wish I could have a literal house warming and invite y’all over for some gluten free goodness, good...

Today was the first time meal prepping in my new place. Super nervous cause it’s a smaller place and it was nerve wracking trying to remember where everything is. Pulled off two complete meals in two hours. My aide remarked how it was amazing how things came together...

Breathing

Breathing

Breathing, feels different in this space. Feels like convalescing and the inability nor desire to get up off the floor because there is nothing thankfully chasing me here. Breathing here is complex. It is some part gratitude and heartbreak mixed with as yet known...

Corner of the World

Corner of the World

My place currently smells like fresh drying laundry. There are two slim boxes of cereal on top of my fridge. The sun is coming in just so through the slats of these blinds. My bp is sitting at 121/80 this morning. And all is right in this corner of the world....

Disabled Chronicles, No. 1350

Disabled Chronicles, No. 1350

This is what 123/84 bp looks like after almost 2 months (started July 7, 2020) of TiTi's Moringa and regular bp meds daily, kidney supportive smoothies every other day, lowering my salt intake and being in a space that is not stressful. My morning aide and I started...

Dreamers

Dreamers

Those who dream by night in the dusty recesses of their mind, wake in the morning to find that it was vanity. But the dreamers of the day are dangerous people, for they dream their dreams with open eyes and make them come true. —D.H. Lawrence

Move

Move

So, here’s mah face. I’ve been super quiet lately cause 2020 has been handing me some huge changes. One of which has been getting ready to move into my very first space. Ever. I’d be lying if I said I wasn’t nervous. But life has a way of being that is weird and head...

Disabled Chronicles, No.2g

Disabled Chronicles, No.2g

I’ve been done with breakfast for about two hours, but I’m still sitting here. The air in my room is heavy with the scent of tuberose and ylang ylang. The blazing warm light of the candle, shining where I feel I can’t. I’m trying to convince myself of all sorts of...

Pandemic

Pandemic

This pandemic has made me stop talking. Has frozen my thoughts from being born. Has stifled my creativity. Has wrapped me in familiar trauma drenched bandages, made new. It’s covered my eyes. It’s muted the taste on my tongue. This pandemic has washed up and over and...

Disabled Chronicles, No. 69053389432794

Disabled Chronicles, No. 69053389432794

I take near scalding showers. If the water don’t make my skin red and prickle - I don’t want or need it in my life. The ‘safe’ setting for most water heaters is B - warm enough to do something but safe enough not to burn children. The one at the house is set between C...

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