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Fight ME!
I was one of those kids who was sure that No ONE was the boss of me; not even my Momma. I remember the very first time I was ever angry with her, being five or six years old and how I glowered at her as she tied my dark brown orthopedic shoes and tried to push me to...
Celiac Chronicles, No.7465
That one time you ask your aide to make you multiple servings of the new Cream Of Rice cereal you found and that was purchased along side Bethany’s Cream Of Wheat... And though they were bagged together but in separate containers, your aide managed to grab the wrong...
Disabled Chronicles, No.8
The amount of advocating I've had to do for myself (and with some help) this past week has been astronomical. This has been on top of the normal fuckery people bring on the daily. It's also made me weary. The landscape of my main condition has been shifting... for...
Disabled Chronicles, No.7
The Set Up I've been putting off getting a new electric power wheelchair for well over a year. Okay, so it's closer to 2/3-ish years. I know, you're thinking, 'But isn't your chair like, important?' Extremely. My wheelchair operates like my legs. If I need to get...
Silent Detonation
Her hands were warm and firm as they held onto mine the first time we were meeting. She knew to reach into my space to complete the connection. Knew from the hours of calls logged, from the technical and medical explanations, knew from my recountings and stories of...
Carry Her With Me
I was cleaning out my purse and forgot that I carry Her with me. Her last rosary and two coins from our trip to France when I was a teenager. It surprised me to find these, even though I was the one who put them where they were. Opening the thinning Asian-style...
#CeliacWhileBlack
New-to-Me doctors are an interesting bunch: They either discount everything I say and treat me like any other typical patient (never a good idea) or they are so determined to peg me into some kind of category that they miss things. That is never good either. So it was...
Hard Stick
Those who’ve been following me for any extended length of time know that my body does not like giving up my veins for sacrifice (this is called: being a hard stick). Not for routine blood work or to save my life. You’d also know my ordeal with Quest labs, where they...
Those You Touch By Showing Up
I dunno how to categorize this (Those You Touch By Showing Up?)... So here you go: I just got off the bus, after a successful call with a new client/art work admirer an hour or so ago. Feeling awed but grateful for things cause wins are awesome after so much loss in...
Amazing! First Art Show
Well... it is done! This art show was AMAZING! I was nervous for a bit but seeing my prints (that many of my Facebook friends helped make happen) fixed all that! Being in that space, with all the other artists was like a dream! It was too awesome having my family and...
Disabled Chronicles, No75
Besides my Aide’s bush tea, I’d be remiss if I didn’t mention that this little peach pill (that I was taking for something else entirely and wholly unrelated) saved me too. Its a low dose, long term antibiotic. And today is my final dose. I know I didn’t go into too...
Study of Hands: Leaning In
On the heels of some pretty awful news two weeks ago, I received an email from someone advising me that they were curating a digital art show and wanted to invite me to participate. I wanted to ignore it. As a matter of fact, when I received a similar email from the...
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